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The Dreamer's 500 Year Diary
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31st-Aug-2015 12:03 pm - My tweets
7th-Aug-2015 12:03 pm - My tweets
  • Fri, 10:50: I wonder how much longer I can keep functioning with only ~4 hours of sleep each night...probably head for a long #sleep occurence #nchat
  • Fri, 10:54: last time it caught up to me.... resulted in a missed appointment at Mayo Clinic... the main reason I needed two visits #nchat
  • Fri, 10:57: a few other times I almost didn't check out of hotel in time to fly home... like from 2013 conference in Atlanta. #nchat
  • Fri, 11:01: and I still fell asleep on train to the airport .... #narcolepsy #nchat
  • Fri, 11:07: hmmm, 140 characters at time isn't working for me with this...
5th-Aug-2015 12:03 pm - My tweets
2nd-Aug-2015 12:03 pm - My tweets
  • Sat, 16:03: Hi everybody, my name is Lawrence, I'm 46, and I live in Manhattan, KS where I was dx'd with #Cataplexy and then #Narcolepsy in 2012 #nchat
  • Sat, 16:14: RT @TheRealMikeHunt: Q1. I don’t know about you but it averages 100 degrees here in AZ. Does the heat this time of year affect your #narcol
  • Sat, 16:15: A1: the humidity makes it even worse around here, at least so far I've avoided going out when its over 110. It really saps me... #nchat
  • Sat, 16:17: I've been contemplating if moving to MN might be in future.... #nchat
  • Sat, 16:21: Had spent more than a couple of weeks up there recently, and I seemed much better than here.... though it could just be the stressors #nchat
  • Sat, 16:22: Though the freak snowstorm while I was there in April was .... kind of pretty. #nchat
  • Sat, 16:22: RT @catthoma: Q2. Because it's so hot out, one might want to go swimming, do you ever worry about a #sleepattack while in the water?. #Nchat
  • Sat, 16:23: A2: I can't recall the last time I been immersed in water.... never seem to remember to pack swim trunks when I travel. #nchat
  • Sat, 16:25: A2: plus, I don't know how to swim....and apparently I need to gain weight to float #nchat
  • Sat, 16:30: RT @TheRealMikeHunt: Q3.When looking for a partner in life, would it help if they had #narcolepsy or rare disease, or would you prefer them…
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11th-Jun-2015 12:02 pm - My tweets
4th-Jun-2015 12:02 pm - My tweets
27th-May-2015 12:03 pm - My tweets
19th-Apr-2015 12:02 pm - My tweets
12th-Apr-2015 12:02 pm - My tweets
5th-Apr-2015 12:02 pm - My tweets
  • Sat, 16:04: Guess tweetchat still doesn't work for me. I'm Lawrence, 46, in Manhattan, KS. w N & C dx in 2012 #nchat
  • Sat, 16:13: RT @TheRealMikeHunt: Q1. Do u refer to someone with #narcolepsy as a “narcoleptic” or as a “person with #narcolepsy? Do you think there is …
  • Sat, 16:15: A1. I think 'person with #narcolepsy' is the one to go with, though I've probably used the other one occasion on myself... #nchat
  • Sat, 16:16: A1 (cont't).... narcoleptic is not my blog ;) #nchat
  • Sat, 16:17: A1 (more): Plus I was a member of PWN before I had gotten my Dx :-D #nchat
  • Sat, 16:19: I've been thinking that I need to rename my blog though....perhaps after I get back from Mayo Clinic next week. #nchat
  • Sat, 16:19: RT @stridesagainstN: Q2. On that note:What do you want the world to know about you/the PWN you support other than the fact that you/they ha…
  • Sat, 16:22: Q2 these days....I hadn't given as much thought to being a PWN as ... hmm, not sure what they call us... PW-SCA? #nchat
  • Sat, 16:25: Yeah, right after Dx, I had such plans on for the things I was going to do .... until the other problem came back and bit me hard. #nchat
  • Sat, 16:26: RT @Dreamer_782: Q2 I would want people to know that I’m smart - even though n can make it hard to appear that way. :-p #nchat
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